Written by a parent, not a doctor. Nothing here is medical advice.

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Nebraska program

Extra home services on the Aged and Disabled waiver

Extra Medicaid services at home for a child who meets nursing-facility care rules (Aged and Disabled waiver).

What it is

Extra Medicaid services at home for a child who meets nursing-facility care rules (Aged and Disabled waiver).

The waiver can add home and community services beyond ordinary Medicaid. The waiver team assesses your child’s care needs and explains whether extraordinary parent care could qualify for payment. Medicaid and waiver eligibility can be discussed together.

Eligibility rules
  • Medicaid eligibility and a nursing-facility level of care are required. Children have age-specific assessment tools.
What you get
  • Additional home and community services in an approved service plan.
  • A review of whether extraordinary parent care could qualify for payment.
  • A service coordinator through DHHS.
What the help covers
  • The waiver team confirms the current parent-payment requirements, permitted tasks and DD-26 process. Ordinary parenting does not qualify; approved extraordinary care and an approved paid-care arrangement are needed before relying on wages.
  • The approved waiver selects no premium or enrollment fee. That does not settle any separate share-of-cost liability.
If you decide to apply
  1. Ask DHHS for waiver application DD-10 and a care-level assessment.
  2. Have the Medicaid notice and a day-by-day account of your child’s care needs ready.

Nebraska DHHS · 877-667-6266 · Official page ↗

After you apply
  • Approval produces a service plan naming the services and hours.
  • The waiver team needs to confirm the assessment steps, expected start date, any Medicaid share of cost and the current requirements for a parent to become an approved paid provider. The service plan must authorize the extraordinary care before the family relies on payment; an assessment is not itself a promise of staffed hours or wages.
Good to know

The waiver application is separate from Medicaid. Regular Medicaid personal care for a child under 21 should not wait for waiver approval.

Other details
  • The waiver office must distinguish eligibility, an available place and a staffed service. A published capacity figure does not establish current availability.
  • The waiver office can explain current priority rules if a waiting list applies to your child.
  • Service coordination moved to DHHS on April 1, 2026. Nebraska’s developmental-disability waivers require a developmental disability, which leukemia alone does not establish.
  • Ask the waiver team how long the wait is between assessment, approval and the first service.
Official sources
Ask your social worker

“Could the waiver add help beyond regular Medicaid home care? Could any of my care qualify for payment, and could you help us weigh the requirements before requesting an assessment?”

Why I’m asking: I want to understand which home services and caregiver support our child’s needs might qualify for.

More background and detailed requirements
Additional program information and published rules

Who does what

The three parts, side by side. The agency decides; nobody on this page does.

You

Ask for form DD-10 and describe what your child needs every day.

Your social worker

The oncology team documents the level of care needed at home.

The care team

The team writes the daily care needs that the assessment turns on.

Who decides
Nebraska DHHS, after a level-of-care assessment.
Ask the agency
“My child needs nursing-level care at home. Please send the waiver application, form DD-10, and start the level-of-care assessment.”

How to apply

First step: Call 877-667-6266 and ask for form DD-10 and a level-of-care assessment.

  1. Call 877-667-6266 and ask for the waiver application, form DD-10.
  2. Ask for the level-of-care assessment by name.
  3. If you provide extraordinary care yourself, ask about the DD-26 assessment.

Official application / program page ↗

Where it starts: A waiver application is separate from Medicaid. Use form DD-10 or call 877-667-6266.

What to gather

  • A day-by-day list of the care your child needs
  • The Medicaid notice

How long: The waiver team confirms the assessment date and expected wait for approved, staffed services.

What a yes looks like

A service plan naming the hours and services, and a service coordinator.

What a no looks like, and the next move

Ask whether it failed on level of care, and what the assessor would need to see.

Watch out

  • The application is separate from the Medicaid one.
  • The two developmental-disability waivers are not leukemia routes: they need a developmental disability.
  • The waiver office confirms current capacity and staffing; a dated June 2026 document does not establish an available place today.

Dates that change this

2026-06-22: The June 2026 waiver document is not a current waiting-list or staffing report. The waiver office confirms present capacity and service availability.

The numbers and the rules

The arcane layer, kept on purpose. Checked September 11, 2026.

What it is worth

Home and community services may be available after Medicaid and age-specific nursing-facility-level eligibility are established; current capacity and staffing need confirmation.

  • $14,000 — Unduplicated participants the waiver is approved for
  • $15,000 — Participants the waiver rises to in year three

Covers: Home and community services beyond the ordinary Medicaid plan · Personal care by a parent, for assessed extraordinary care, on form DD-26 · Service coordination through DHHS

Legal protection: The waiver office confirms current capacity, priority rules and the expected wait; a dated capacity statement is not a live service guarantee.

What it costs the family: The approved waiver selects no premium or enrolment fee. That is not a ruling on any share-of-cost liability.

The eligibility facts, as published

Other
Medicaid eligibility plus a nursing-facility level of care, assessed with an age-specific tool
Residency
Nebraska
Processing standard
The waiver team confirms assessment steps and expected service-start dates.

Decisions this site cannot make: A nursing-facility level-of-care assessment using an age-specific tool

Expect friction on: The waiver team coordinates the Medicaid and waiver eligibility assessments and confirms current capacity, assessment timing and staffing.

The trap: Do not let anyone use the waiver to delay ordinary care: for a child under 21, personal care the state plan can cover must come through Health Check, not the waiver.

Where I read this

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