Written by a parent, not a doctor. Nothing here is medical advice.

Federal, exists in every state

Medicaid services at home and waiver programs

Home-care waivers pay for approved services when a child meets that waiver’s disability and care rules.

What it is

Home-care waivers pay for approved services when a child meets that waiver’s disability and care rules.

South Dakota’s child-serving waivers require intellectual or developmental disability criteria that leukemia alone does not meet. Medicaid can review skilled nursing through its ordinary benefits and the under-21 well-child rule. The Disabled Children’s Program is an eligibility route, not a waiver.

Waiver rules
  • CHOICES requires intellectual or developmental disability and intermediate-care-facility level of care. Family Support 360 requires an examination establishing intellectual or developmental disability.
  • Assistive Daily Living Services requires age 18 or older and quadriplegia. HOPE serves adults aged 18–64 with disabilities and people 65 or older.
  • CHOICES and Family Support 360 assess qualifying intellectual or developmental disabilities, functional needs and facility-level care. DHS also checks Medicaid eligibility. DHS confirms current openings, waiting lists, priorities, assessment steps, individual budgets and any family charges. Ordinary Medicaid nursing and the Disabled Children’s Program do not require an intellectual or developmental disability.
What you get
  • Approved home services when the specific program’s care and eligibility rules are met.
If you decide to apply
  1. Ask the discharge team which Medicaid service fits your child’s daily care needs.
  2. Bring a description of the tasks, how often they happen and which need a nurse.

South Dakota Department of Human Services: CHOICES or Family Support 360; your discharge planner can help

Good to know

A waiver assessment, Medicaid nursing approval and finding an available nurse are separate steps.

Ask your social worker

“Which home-care route fits our child, what are its limits, and could you help us arrange the right assessment?”

Why I’m asking: I want to understand help at home without assuming that leukemia qualifies for a waiver.

More background and detailed requirements
Additional program information and published rules

Who does what

The three parts, side by side. The agency decides; nobody on this page does.

You

Register the child on the list, keep the task log, and answer the assessment call when it comes.

Your social worker

Names the waiver that takes medically fragile children in this state and helps with the registration form.

The care team

Documents the nursing-level tasks and the risk if care stops.

Who decides
The state waiver agency after a level-of-care assessment
Ask your social worker
“Which home-care program fits my child, and can we register today? Can Medicaid start home-nursing hours while we wait?”

How to apply

First step: Ask the discharge team which state home-care service or waiver fits your child's assessed needs, and how to apply.

  1. Register on the list this week.
  2. Ask the Medicaid plan for EPSDT nursing hours while you wait.
  3. Keep a two-week task log for the assessment.

Where it starts: State application or interest list. Assessment when a slot opens

What to gather

  • A two-week log of daily tasks: what, how often, how long
  • Doctor's letter naming nursing, equipment or safety needs
  • Medicaid ID if the child has one

How long: Application steps, assessment timing and waiting-list availability depend on the specific state program. Ask for its current process.

What a yes looks like

A service plan with approved hours and a case manager's name.

What a no looks like, and the next move

“Does not meet level of care” or “no slot”: ask for Medicaid's rule that a child under 21 gets what is medically needed nursing through the Medicaid plan instead, and stay on the list.

Watch out

  • If a suitable waiver has a waiting list, ask how and when to register and how priority is determined.
  • For a child already on Medicaid, Medicaid's rule that a child under 21 gets what is medically needed home nursing can start long before a waiver slot opens. Ask for both.
  • The assessment considers the child's actual care needs under the specific program's rules. No diagnosis or item of equipment guarantees approval.

The numbers and the rules

The arcane layer, kept on purpose. Checked September 7, 2026.

What it is worth

Nursing hours, respite, personal care, equipment, home changes and a case manager. The value is the approved hours.

Covers: Case management · Respite · Personal care · Nursing (some waivers) · Adaptive equipment · Home and vehicle modifications · Caregiver training

What it costs the family: Medicaid-delivered. Patient liability depends on the state.

The eligibility facts, as published

State specific
yes
Institutional level of care
yes
Target population
medically fragile or technology-dependent children in most states

Decisions this site cannot make: Level of care · Service-plan necessity · Financial eligibility (child-only in institutional-deeming waivers)

Expect friction on: Interest lists · Provider shortages · Reassessment

The trap: Ask which waiver, if any, serves your child's needs and whether it has a waiting list. Request covered Medicaid services separately while any waiver application is reviewed.

What changes by state: Which waiver takes medically fragile children, the list length (Texas runs years), and whether parents' income is ignored.

Where I read this

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