Written by a parent, not a doctor. Nothing here is medical advice.

Childhood Cancer Lantern
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Virginia program

Medicaid through a care-needs screening (CCC Plus waiver)

CCC Plus can add approved care at home and may open Medicaid using your child’s finances.

What it is

CCC Plus can add approved care at home and may open Medicaid using your child’s finances.

The care screening is the first gate. A cancer diagnosis alone does not meet it. If your child qualifies, parental income is not included in this Medicaid test.

Eligibility rules
  • The $2,982 monthly limit is 300% of the federal SSI rate, effective January 1, 2026. Parents’ income is not deemed.
  • There is no resource test for a child under 18 in this group.
  • CCC Plus requires institutional-level care and a safe plan for care in the community. The eligibility worker can also check other Medicaid routes, including whether a state-plan disability route applies.
What you get
  • Medicaid and separately approved waiver services when your child meets the requirements.
  • Your child’s own monthly income limit is $2,982.
What the rules cover
  • Developmental-disability waivers are separate. They require a developmental disability and are not a route based on leukemia alone.
If you decide to apply
  1. Ask the hospital discharge planner or local Department of Social Services for a long-term services screening.
  2. Bring a description of care needed at home and your child’s financial information for the Medicaid application and Appendix D.

The screening team decides the level of care; the local Department of Social Services decides the money · Official page ↗

If you decide to apply
  • Community screening forms are due within 30 days of the request. A hospital screening must finish before discharge to long-term services.
Good to know

The screening must find the required level of care. High medical bills alone do not qualify.

Other details
  • Basic Medicaid can already cover your child while a separate assessment considers waiver services.
  • DMAS describes CCC Plus as serving all ages without a waiting list. Screening, service approval and finding workers still affect the start date. The eligibility worker can also check spenddown or other coverage groups if ordinary income screening is too high. A separate qualifying developmental disability may allow another waiver route.

Federal background: Home and community-based services waivers.

Official sources
Ask your social worker

“Could our child’s care needs qualify for the waiver? What would the assessment involve, and could you help arrange it if this route fits?”

Why I’m asking: I want to know whether a waiver could help with coverage or the care our child needs at home.

More background and detailed requirements
Additional program information and published rules

Who does what

The three parts, side by side. The agency decides; nobody on this page does.

You

Ask for the screening in writing, and ask for it before discharge if your child is still admitted.

Your social worker

The discharge planner can do the screening in the hospital; the social worker gets the paperwork moving.

The care team

The nurse and doctor describe what care your child needs at home, in the words the screening uses.

Who decides
A screening team decides the level of care; the local Department of Social Services decides the money.
Ask your social worker
“Our income is over the ordinary Medicaid line. Can we have a long-term services screening for the waiver before discharge, with the paediatric nursing form if nursing is needed?”

How to apply

First step: Discuss a long-term-services screening and the application steps with the discharge planner or social worker, including any discharge-related timing.

  1. Ask the discharge planner today for a long-term services screening while your child is still in hospital.
  2. Ask for the Medicaid paper application and Appendix D at the same time.
  3. If nursing hours are the point, ask that the paediatric nursing form goes with the screening.

Official application / program page ↗

Where it starts: Ask the local Department of Social Services for a long-term services screening, or ask the hospital discharge planner to do the screening before your child goes home. Then file the Medicaid paper application with Appendix D.

What to gather

  • Notes on what care your child needs at home and how many hours
  • Your child's own income, if any
  • The hospital discharge plan

How long: Community screening forms are due within 30 days of the request; a hospital screening must be finished before discharge to long-term services. No measured wait to a nurse starting was published.

What a yes looks like

A screening that finds the level of care is met, then a Medicaid notice on your child alone and a health plan that authorises the hours.

What a no looks like, and the next move

If the screening says the level of care is not met, ask which findings were short and whether a change at home would alter it. If your income drops under the ordinary line, the ordinary door opens instead.

Watch out

  • The gate is the level-of-care screening, not the money. Leukemia alone does not meet it.
  • The developmental-disability waivers are a different queue and need a developmental disability; they are not a leukemia route.
  • The state says there is no waiting list, but it gives no date and no count for that. Ask the screener what happens next and when.

The numbers and the rules

The arcane layer, kept on purpose. Checked September 11, 2026.

What it is worth

Full Medicaid decided on the child's own income, up to $2,982 a month, with nursing and personal care at home. No savings test under 18.

  • $2,982/month — Limit on the child's own income for the long-term-care group

Covers: Full Medicaid cover · Private duty nursing at home · Personal care and attendant help · Respite care · Assistive technology and environmental changes

Legal protection: Parents' income and savings are not counted once the screening approves community-based care

What it costs the family: No premium was published for this group.

The eligibility facts, as published

Income
the child's own income at or under $2,982 a month (300% of the federal disability payment, effective January 1, 2026); parents' income is not deemed
Resources
no resource requirement for a child under 18 in this group
Level of care
hospital or nursing-facility level of care, decided by the screening
Screening
community screening forms within 30 days of the request; a hospital screening must be completed before discharge to long-term services
Waiting list
the state says the waiver has no waiting list; the statement is undated and is not a count
Katie beckett
not elected in Virginia

Decisions this site cannot make: Long-term services screening using the Uniform Assessment Instrument, with the DMAS-109 paediatric nursing form where nursing is sought · Local Department of Social Services financial determination on the child alone

Expect friction on: Getting the screening done before discharge · No dated count of how long a slot takes

The trap: The developmental-disability waivers are a different thing with a waiting list ranked by urgency, and they need a developmental disability. Leukemia does not qualify for those. Ask for the long-term services screening, not a developmental-disability waiver.

Where I read this

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