Written by a parent, not a doctor. Nothing here is medical advice.

Support organization

Courageous Parents Network

You can learn from other parents and clinicians through guides, videos and live online discussions. The collections also help you think through difficult care decisions and grief.

About this organization

Courageous Parents Network helps you understand care choices and feel less alone while caring for your child.

Parent stories, practical guides and online discussions for caring for your seriously ill child.

Programs that may help

Peer And Emotional Support

B-ALL in scope Open

In the Room

Live online conversations where you can hear parents and clinicians discuss caring for a seriously ill child.

Helps with: Peer And Emotional Support

Where: Local rules apply

Care team must start: No

See eligibility and how to apply →

Guides and family resources

Guide · Video

Coping with Loss

You can explore guidance about grief, changes in family life and keeping a connection with your child. Parent experiences sit alongside practical explanations.

Topics: Bereavement, Grief, Continuing bonds

Open the official resource ↗

Guide · Video · Blog

Media Library

You can hear parents and clinicians describe care decisions, family life and grief. Filter the collection by topic, diagnosis or language.

Topics: Care decisions, Caregiver well-being, Sibling support, Grief

Open the official resource ↗

Guide · Worksheet

Navigating Medical Complexity

You can explore questions about care decisions and life with your child’s medical needs. A map and linked worksheet help you record questions for your care team.

Topics: Medical complexity, Working with the care team, Care planning

Open the official resource ↗

Official sources

Organization details were last verified Sep 25, 2026. Program availability can change.