Written by a parent, not a doctor. Nothing here is medical advice.

Support organization

Hawaii Department of Health, Children with Special Health Needs Branch

Hawaii’s Children with Special Health Needs Branch coordinates statewide, family-centered support for children and youth with chronic health or developmental needs. The Specialty Support Program provides no-cost care coordination to eligible Hawaii residents under 21 and may separately preauthorize limited income-tested medical services. Early Intervention Services supports eligible children under three at no family cost, while Hiʻilei offers free developmental screening through age five. B-ALL is not an automatic diagnosis route in these programs; a child must meet each program’s chronic-condition, specialist-care, developmental-delay, age, residence, and team-determination rules.

About this organization

Improves access to coordinated, family-centered care and systems for children and youth with special health needs under Hawaii’s Title V responsibilities.

Statewide care coordination, early intervention, developmental screening, transition guidance, and special-health-needs resources for Hawaii children and families.

Programs that may help

Medical And Insurance Costs

Navigation Guides And Advocacy

Guides and family resources

Patient Support Material

Our Moʻolelo Family Stories

Our Moʻolelo is a public collection of family stories intended to offer comfort, connection, resilience, and learning for families of children with special health needs. It is not a live support group, and no cancer-specific story was identified.

Topics: connection, family stories, resilience, special health needs

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Guide · Video · Worksheet

Transition to Adult Health Care Resources

The branch’s transition hub offers still-linked planning tools on self-management, providers, medicines and supplies, insurance, adult doctors and dentists, SSI and guardianship, work, school, transportation, and recorded transition education. Several HDOH tools date from 2018–2022.

Topics: insurance, school and work, self-management, transition to adult care, transportation

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Guide · Patient Support Material

Early Intervention Family Guides and Rights

The EIS family-resource hub bundles guidance on family-team coaching, support-team meetings, procedural rights, FERPA, mediation, complaints, due process, development, hearing, dental care, and parent training. Materials remain officially linked but several are dated 2016–2021.

Topics: complaints, development, early intervention, family coaching, procedural rights

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Guide · Resource Directory

Hawaiʻi Genomics Guide to Genetic Services

The HDOH genetics guide explains genetic consultation and lists pediatric, adult, cancer, prenatal, and military-family genetics services in Hawaii. It is a referral directory rather than HDOH-delivered counseling; cost, insurance, referral, telehealth, and appointment availability are not published.

Topics: cancer genetics, genetic consultation, hereditary risk, provider directory

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Resource Directory

Sharing Our ʻUlu and SWYC Resource Lists

Current branch pages link statewide and county referral lists for childcare and education, child and family health, behavior, protection, health coverage, food, housing, economic needs, and other services. The lists are dated June 2022 and should be used with a stale-content warning.

Topics: early childhood, education, family support, food, health care, housing

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Official sources

Organization details were last verified Aug 24, 2026. Program availability can change.